Monday, December 4, 2017

A Kid Again Christmas


On Saturday we went to the A Kid Again Christmas Party. It's a party for terminal ill children that have been granted a wish through Make A Wish.
We made Christmas cards and yes that is Scott doing a great job crafting away. Hehe
There was a bunch of games Noah could play.
We got up close and personal with some animals form the Columbus Zoo.

Noah always has a great time. He received this little cute dachshund at one of the games.
After the party we were able to meet up with a family that is going to start ABR in January.  We were able to answer a lot of questions they had. How nice it would have been to have had someone to ask the same questions to 10 years ago when we started ABR. We were nervous to start our ABR journey but we are so glad we did.
 
Speaking of ABR check out Noah's head control going through Walmart when we stopped on the way home.

Tuesday, November 28, 2017

Columbus Zoo Lights


We recently got our Beastly Manor Magazine from the Columbus Zoo. On the front was a picture of their zoo lights, I was bummed looking at it because it's never nice enough for Noah to enjoy them. I then headed out to get him from school and it suddenly dawned on me, it was 60 degrees outside!!!! Right then I decided I was going to pick Noah up from school and make a trip to the zoo to see the lights.
We had a wonderful time. It sure was a beautiful night to enjoy the lights.
We even took the time to enjoy the aquarium. We really enjoyed our impromptu trip to the zoo.

Tuesday, November 7, 2017

Changes We Have Noticed

When Noah is sitting in his chair he used to flip his out beyond his footrest poles. Now he may kick them out but his resting spot in on his footrest.

When Noah was sitting here I could see and feel him pushing through his feet to stay upright. The ABR wraps we have really helped his brain realize that he has hands and feet.
Noah has always loved holding tight to your finger but has always struggled with grasping objects. With the new ABR wraps his grip is getting better. He was even squeezing Jabba the Hutt in this picture.

Saturday, October 28, 2017

Trunk or Treat

Our family had fun doing Trunk or Treat at The First Lutheran church
My Mom and Dad did Cars.
My sister Sandra did Mary Poppins. Isn't she just the cutest?


My neice Debbie did Moana.

Emily and Mitchell did High School Musical.
Noah and I did Toy Story
It was too cold for Noah(Andy), so he hung out in the van. Sorry little buddy....

Morgan and Brad did Monsters Inc. Can you spot our little pumpkin?

Saturday, October 21, 2017

A Day at the Pumkin Patch

We had a great family day at the pumpkin patch. We really missed Scott and Brad, they had to work.







I love how Noah's big sisters always make sure he is engaged in our fun.




We did pretty getting through the corn maze. Never mind the one time we had to pull Noah between the rows to get back on track. Ssshh

What a beautiful Momma to Be.

Noah had fun with the corn cob cannon. Thank you Mitchell for helping Noah, he had a blast.

We had fun carving our pumpkins we picked out.

Can you guess who Noah's is?

The best pumpkin of all!!!

Saturday, October 14, 2017

Another Piece to the Puzzle


Finding things to help Noah have a better quality of life is like a puzzle. We started ABR 10 years ago this month. Because of ABR Noah is healthier and stronger. I can't imagine what Noah would be like if we hadn't started ABR all those years ago.
Eagle Eye is the latest piece of the puzzle we found. Noah is getting much better with his accuracy. I can't wait to see what this will lead to. Some day we may not be able to keep him quiet. I can't wait!!
Below is a video of Noah doing a fantastic job. Enjoy!!

Wednesday, October 4, 2017

Noah and Eagle Eye


Noah this is your day to shine. Let's show them you are a smart boy that is stuck in a body that won't allow you do anything. You can do this sweet boy, we love you. 
I have fought for Noah for years to have a way to show the world that he has potential. He is more than a boy that just sits in a chair and has no way to communicate with his world. 
Today we are happy to say Noah ROCKED it!!!
I had a rough time falling asleep last night. I couldn't shut my brain off. I so wanted this to be what would finally open up Noah's world. I also kept thinking that if this wasn't for Noah, because of Noah a lot of children could be helped by Eagle Eye.

All through the two days of meetings, I saw the school staff think of other students the Eagle Eye could help.  They were excited by all of the possibilities Eagle Eye would give them to help a lot more kids than they originally thought. As we were wrapping up for the day it was decided to call this the Noah Project. I can't wait to see where all this goes just because a young man named Noah.
 After our first day and half of the second day was spent learning about how the Eagle Eye worked and how all the software worked, after lunch we actually got to apply the electrodes to Noah so he could try it out. 
We all took turns practicing our technique for putting the electrodes on.  Believe me, it's not as hard as it sounds.
Noah tolerated the electrodes a lot better than I thought he would.  He was laughing while each of us put our electrode on his face. 
Even Tim Tarvin, Shelby's superintendent, stopped by in the afternoon to watch Noah try the Eagle Eye.  As the cursor on the screen would approach its target, Tim would try to help Noah with body english.  We all were!
The first program Noah tried was called Eagle Paint.  It leaves a trail of color everywhere Noah was moving his eyes.  It's a warm-up exercise to help acclimate a person to the Eagle Eye.  Noah made some interesting designs. Below is a video of Noah trying out his first Eagle Eye program.  He had to move the cursor with his eyes until it hit a target.  When he hit the target, a video would play. 
  
The trainer was impressed with how Noah did his first time hooked up to the Eagle Eye.  I think everyone present was impressed.  As Noah gets better and better operating the Eagle Eye, he will be able to communicate with us in ways we never dreamed of.  This is definitely an exciting time for Noah and all of us.