Wednesday, October 4, 2017

Noah and Eagle Eye

Noah this is your day to shine. Let's show them you are a smart boy that is stuck in a body that won't allow you do anything. You can do this sweet boy, we love you. 
I have fought for Noah for years to have a way to show the world that he has potential. He is more than a boy that just sits in a chair and has no way to communicate with his world. 
Today we are happy to say Noah ROCKED it!!!
I had a rough time falling asleep last night. I couldn't shut my brain off. I so wanted this to be what would finally open up Noah's world. I also kept thinking that if this wasn't for Noah, because of Noah a lot of children could be helped by Eagle Eye.

All through the two days of meetings, I saw the school staff think of other students the Eagle Eye could help.  They were excited by all of the possibilities Eagle Eye would give them to help a lot more kids than they originally thought. As we were wrapping up for the day it was decided to call this the Noah Project. I can't wait to see where all this goes just because a young man named Noah.
 After our first day and half of the second day was spent learning about how the Eagle Eye worked and how all the software worked, after lunch we actually got to apply the electrodes to Noah so he could try it out. 
We all took turns practicing our technique for putting the electrodes on.  Believe me, it's not as hard as it sounds.
Noah tolerated the electrodes a lot better than I thought he would.  He was laughing while each of us put our electrode on his face. 
Even Tim Tarvin, Shelby's superintendent, stopped by in the afternoon to watch Noah try the Eagle Eye.  As the cursor on the screen would approach its target, Tim would try to help Noah with body english.  We all were!
The first program Noah tried was called Eagle Paint.  It leaves a trail of color everywhere Noah was moving his eyes.  It's a warm-up exercise to help acclimate a person to the Eagle Eye.  Noah made some interesting designs. Below is a video of Noah trying out his first Eagle Eye program.  He had to move the cursor with his eyes until it hit a target.  When he hit the target, a video would play. 
The trainer was impressed with how Noah did his first time hooked up to the Eagle Eye.  I think everyone present was impressed.  As Noah gets better and better operating the Eagle Eye, he will be able to communicate with us in ways we never dreamed of.  This is definitely an exciting time for Noah and all of us. 

Friday, September 29, 2017

Such a Hard Decision

This last week we have made a very hard decision. We have a decided to have Bindi switched out for a different dog. I was really hoping I could get her to settle down in time but I came to realize that wasn't going to happen.
When we are out and about Bindi is very nervous and takes so much of my time away from Noah.
She does wonderful at home and has always been all about Noah.
When we are out and about I would take the strap of her vest and loop it around Noah's seat belt on his chair to try and keep her from doing a lap dance on Noah's lap. Sadly that didn't stop her from doing her lap dance but instead wore the fur off of her shoulder. That's when I realized that we can't keep Bindi. It will take time to find a new dog but until then we will enjoy Bindi at home.

Friday, September 22, 2017

Shriner's Picnic

Every year the Shriners have a picnic at the Richland County Fairgrounds.
They have a lot of the things for the kids to experience and do.

Noah got to ride a horse with Emma.
His name was Ricochet.

Tuesday, September 19, 2017

Take Me Out to the Ballgame

We the most perfect day watching the Cleveland Indians win!!

This was Noah,Scott and I's view at the game.
Wee could also see Morgan, Brad,Emily and Mitchell. I sure wish we could afford for everyone to sit together at the game. Oh well we got to go as a family and that is all that matters.
I love to see Noah light up when he sees Slider.

Last week was a ruff week for me. My anxiety was off the charts. I kept reliving each day from a year ago.  I had a smile on my face but my insides were a mess. Putting him to bed when we got home from the game was so hard. I was in tears. I'm so glad our fun family day didn't turn out the same as last year.

Tuesday, September 12, 2017

A Day at with the Columbus Crew

It was great day to watch a Columbus Crew game.
Bindi did okay  but she tends to be on high alert of anticipation of the fun that is ahead.
The game ended in a tie. 1-1
It was a great day spent with my good friend Susan. thanks for spending the day with us.
Bindi tends to do better sometimes under Noah's chair.

Monday, September 11, 2017

Go Ohio Dominican!!!

We asked Noah if he wanted to go see Tristan play football. He said yes. ( a long blink) So off we went to Ashland to see him play.

Noah had fun cheering on the Ohio Dominican football team with his favorite person Deanie.

He was watching his friend Tristan Kehres play defense. He is number 99.
Go Tristan Go!!!!

Monday, September 4, 2017

Never Would Have Thought

Growing up in Shelby away from our family, I would have never thought that one day I would look down the field to see a flag waving from Oak Harbor. (The town my Dad grew up in.)
Last Friday it was cold enough for Noah to wear his big warm blanket. We brought Bindi to the game I promise.
See I told you........ she actually really like being under the blanket. She felt very safe there.